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小美 | 17th Apr 2008 | English Edition | (46 Reads)
This is a real story about who fought against blood disease for all his life.

    

Because of my investigative reporting, incidentally I came across Lee jin-chang’s special life.  Like most others, he experienced many uncertainties of life, high and low, sweet and bitter. Unlike others, he suffered from hemophilia and AIDS at one time in his 44 years of life. Although he had once surrendered, he struggled to strive for late justice with all his strength and didn’t yield himself to destiny.

 

Hemophilia—AIDS, a raher unfamiliar term for most people, became a lifelong nightmare for 53 hemophiliac infected with HIV due to injection of blood clotting factor.  Although hemophilia has been replicated and passed along for thousands years in human blood, and AIDS has also been discovered for more than twenty-seven years, most people in our society still misunderstand the disease rather than been understanding and sympathetic. Hemophilia AIDS patients are compelled to isolate themselves from people, and eventually die without being noticed.

 

Hemophilia AIDS patients have been the weakest among the weak. Under such difficult conditions, fortunately, Leejin-chang, the emulous Hemophilia AIDS patient, disregarded all scruples and stood up to face mass media, doctors, and government officials and revealed his own sufferings and experiences to the public. Suffering from the disease compelled this indifferent person to experience an unusual way of life.

 

Standing up again from a succession of frustrations, Lee jin-chang learned to face fearlessly and accepted with ease his own difficult condition and lived with dignity and confidence. Furthermore, he kept a diary of his own precious life which was full of blood and tears in the struggle between a discriminated patient and the monster medical system.

 

Having experienced the pain of articular bleeding and hydrarthrosis, and having endured the “grace ” of AIDS, Hemophilia AIDS patients began to develop amazing willpower to survive a crisis while experiencing kindness as well as cruelty of the surrounding people.

 

Life is a one-way street, and everyone will be dead in the end. Although Lee jin-chang lost the fight with the disease and eventually left the world with regret, he still was concerned, at the time of death, when the bill, “the regulation of compensation for AIDS suffers infected by drug”, will pas the legislation. He was also concerned whether Hemophilia AIDS patients can receive fair medical care, and how the surviving family members live after the patient’s death.

 

When Lee jin-chang was still alive, he had revealed his love many times to his grandmother, parents, elder sister, families and friends, confessed that he could not repay them forever. This book is written in memory of a brave man who had stood up for dignity of life during his lifelong struggle against hemophilia-AIDS.